Securing Their Future: Estate Planning for Parents of Special Needs Children in Central Florida

March 4, 2025
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The Unwavering Importance of Planning


Raising a child with special needs is a journey marked by profound love and unique challenges, particularly when considering their long-term security. For parents in Central Florida, estate planning transcends simple wealth transfer; it’s a crucial act of safeguarding their child’s future. Without a robust estate plan, children with disabilities face vulnerabilities: financial instability, inadequate medical care, and potential loss of essential government benefits like SSI and Medicaid.


At Sibley & Associates PLLC, we understand the gravity of these concerns. Attorney Dee Sibley, a trusted and experienced estate planning attorney, leads our firm with the guiding principle, “Planning For Life…Building For Legacy,” ensuring families find tailored solutions for their unique needs.


Essential Elements of a Special Needs Estate Plan

  1. Special Needs Trusts (SNTs): A Foundation of Security
  2. SNTs are vital for preserving a child’s eligibility for government assistance while providing supplemental support. We distinguish between:
  3. First-Party SNTs: Utilizing the child’s own assets, such as inheritances, to meet supplemental needs.
  4. Third-Party SNTs: Established by family members to provide financial support without jeopardizing public benefits.
  5. How We Assist: Sibley & Associates PLLC meticulously structures SNTs to ensure legal compliance and optimal benefit for your child.
  6. Guardianship and Conservatorship: Ensuring Continued Care
  7. As children with special needs transition into adulthood, legal authority is often necessary for ongoing decision-making.
  8. Guardianship allows for personal and medical decisions, while conservatorship manages financial and legal matters.
  9. Our Approach: Attorney Dee Sibley guides parents in determining the appropriate level of legal authority, whether full guardianship or a less restrictive alternative.
  10. Letter of Intent: A Blueprint for Care
  11. This crucial, though non-legally binding, document outlines your child’s daily routines, medical needs, educational requirements, and personal preferences, providing a roadmap for future caregivers.
  12. Why It’s Essential: We help parents create detailed Letters of Intent, ensuring their child’s unique needs are understood and respected.
  13. Life Insurance Planning: Financial Security Amplified
  14. Life insurance can fund SNTs and provide additional financial security. Careful planning is vital to avoid jeopardizing government benefits.
  15. Our Role: We assist in selecting and structuring appropriate life insurance policies to align with your estate planning goals.
  16. ABLE Accounts: Empowering Financial Independence
  17. ABLE accounts enable tax-advantaged savings for qualified disability expenses without affecting public benefits eligibility, covering housing, education, healthcare, and more.
  18. How We Assist: We guide families in effectively utilizing ABLE accounts in conjunction with SNTs.


The Perils of Inaction: Risks of Neglecting Estate Planning

Without a comprehensive estate plan, families face significant risks:


  • Loss of critical government benefits due to improperly structured inheritances.
  • Court-appointed guardianships that may not align with your child’s specific needs.
  • Family disputes arising from unclear care and financial management plans.


Why Choose Sibley & Associates PLLC?

We offer specialized expertise in special needs estate planning, combining legal knowledge with genuine compassion.


  • Personalized Solutions: Tailoring estate plans to each family’s unique circumstances.
  • Expertise in Special Needs Planning: Deep understanding of relevant laws and benefit programs.
  • Peace of Mind: Comprehensive support, ensuring all legal and financial aspects are addressed.
  • Comprehensive Support: Handling all estate planning aspects with care and professionalism.


Take the First Step Today

Securing your child’s future is paramount. If you're a parent of a special needs child in Central Florida, don’t delay. Contact Sibley & Associates PLLC today to schedule a consultation. Attorney Dee Sibley and our dedicated team are here to guide you through the estate planning process with confidence.

June 6, 2025
Life in Melbourne, Florida, is something special. We live where others vacation, enjoying the unique rhythm of the Space Coast, the beautiful beaches, and the vibrant community we call home. We meticulously plan for so many aspects of our lives here—from hurricane season and family vacations to retirement and our children’s education. Yet, one of the most crucial forms of planning is often overlooked: estate planning. Many Melbourne residents believe estate planning is a tool reserved for the ultra-wealthy or something to consider only in their golden years. This is a dangerous misconception. The reality is, if you are an adult with assets or loved ones who depend on you, you need an estate plan. It is the ultimate act of protection for your family and the foundation for your legacy. Without a comprehensive estate plan, you are leaving the most critical decisions about your assets, your health, and even your children's future up to the state of Florida and the Brevard County courts. At Sibley Law & Associates, PLLC, we believe every Melbourne family deserves the peace of mind that comes from taking control. This is what "Planning For Life...Building For Legacy" truly means. Let’s explore why this planning is so essential for your family. When You Don’t Make a Plan, Florida Makes One for You One of the most significant consequences of not having a Last Will and Testament is that you die "intestate." This legal term means the state of Florida, through its rigid intestacy statutes, will dictate exactly how your assets are distributed. This pre-set formula does not consider your personal wishes, the nuances of your relationships, or your family’s specific needs. How Florida’s Intestacy Laws Work: The state’s plan is based entirely on familial relationships. Here are a few common scenarios for Melbourne residents: Married with Shared Children: If you are married and all your children are descendants of both you and your surviving spouse, your spouse will inherit your entire estate. This may sound fine, but what if you wanted to set aside specific assets for your children immediately? Without a plan, you have no say. Married with Children from a Prior Relationship: This is where Florida's plan can be particularly surprising. If you have children from a previous relationship, your surviving spouse inherits only half of your estate. The other half is divided among all of your children (from both your current and prior relationships). This could create unintended financial strain on your spouse and potential conflict within your blended family. Single with Children: Your children inherit your entire estate, divided equally. Married with No Children: Your surviving spouse inherits everything. Single with No Children: Your estate will pass to your parents. If they are deceased, it goes to your siblings, and the line of succession continues down a prescribed path. Who Gets Left Out? Florida's intestacy laws make no provisions for unmarried partners, regardless of how long and committed the relationship. A beloved significant other, a cherished friend who is like family, or a favorite charity will receive nothing from your probate estate without being explicitly named in a Will or Trust. Effective estate planning ensures that the people and causes you care about most are the ones who benefit from your life's work. Protecting Your Most Precious Assets: Your Children For any parent in Melbourne, there is no greater concern than the well-being of their children. A comprehensive estate plan is the single most important tool you have to protect them if you are no longer there to do so yourself. The Critical Role of Naming a Guardian If you have minor children and pass away without legally nominating a guardian, the 18th Judicial Circuit Court in Brevard County will be forced to appoint someone to raise them. A judge, acting with the best intentions but without knowing you or your family, will make this life-altering decision. This process can be fraught with problems: Uncertainty and Instability: While the court deliberates, your children could be placed in temporary care, adding trauma to an already devastating situation. Family Disputes: Well-meaning relatives might disagree on who is best suited to be the guardian, leading to public and painful court battles that can permanently damage family relationships. An Unintended Choice: The judge may appoint someone you would never have chosen—someone with different parenting philosophies, religious beliefs, or financial habits. Your Last Will and Testament is the only legal document where you can nominate the guardians you want for your children. This is your voice, telling the court who you trust to provide the love, care, and stability your children deserve. You can also name alternate guardians in case your first choice is unable to serve. This single act provides immense clarity and protection. Managing Your Children’s Inheritance Leaving a large inheritance directly to an 18-year-old is rarely advisable. Without planning, that is exactly what could happen. A well-designed estate plan can establish a Trust for your children. This allows you to appoint a Trustee—a trusted person or financial institution—to manage the inheritance on their behalf. You can set the terms for distribution, ensuring the funds are used for important milestones like education, a first home purchase, or starting a business, and distributed at ages when they are mature enough to handle the responsibility. Planning for Life's "What Ifs": The Importance of Incapacity Planning Estate planning isn't just about what happens after you die. It's equally about protecting yourself and your family if you become incapacitated and unable to make decisions for yourself due to an accident or illness. Without proactive incapacity planning, your family may face what is often called a "living probate." The Alternative to Planning: Court-Ordered Guardianship If you become incapacitated without a plan, your loved ones would have to petition the Brevard County court to have you declared legally incompetent and have a guardian appointed. This process can be: Public: Your private medical and financial details become part of the public record. Expensive: It involves significant attorney's fees and court costs, all paid from your assets. Time-Consuming: The legal process can be slow and cumbersome. Stressful: It places a tremendous emotional burden on your family during an already difficult time. The Solution: Essential Incapacity Documents A comprehensive Melbourne estate plan includes critical documents to avoid this scenario: Durable Power of Attorney: This document allows you to appoint a trusted agent to manage your financial and legal affairs if you are unable to do so. This person can pay bills, manage investments, and handle property matters on your behalf without court intervention. Health Care Surrogate Designation: This lets you name a person to make medical decisions for you if you cannot communicate your own wishes. This ensures decisions are made by someone who knows you and your values. Living Will: This document outlines your wishes regarding life-prolonging medical procedures, providing clear guidance to your family and doctors and relieving them of the burden of making these difficult decisions on their own. Navigating the Brevard County Probate Process Probate is the formal court-supervised process of validating a Will, paying off estate debts, and distributing assets to beneficiaries. In Florida, even if you have a Will, your estate will likely go through some form of probate. However, a well-drafted estate plan can make this process significantly smoother and more efficient. Without a plan, the probate process can become more complex and contentious, as the court must first identify legal heirs and appoint a Personal Representative. With a properly drafted Will, you choose your Personal Representative (Executor), streamlining the initial stages. The Power of Trusts to Avoid Probate For many Melbourne families, a primary goal of estate planning is to avoid probate altogether. This is most commonly achieved through a Revocable Living Trust . Assets titled in the name of your Trust during your lifetime do not have to go through the probate process upon your death. They can be managed and distributed privately by your chosen successor Trustee. This offers several key benefits: Privacy: Trusts are not public documents like Wills. Efficiency: Trust administration is typically much faster than probate, allowing assets to be distributed to your loved ones more quickly. Cost Savings: By avoiding court fees and minimizing legal expenses, more of your estate is preserved for your beneficiaries. Continuity: A Trust also provides for seamless management of your assets if you become incapacitated, as your successor Trustee can step in immediately without court involvement. Your Melbourne Family Isn't Cookie-Cutter; Your Plan Shouldn't Be Either Every family in Melbourne is unique, and a one-size-fits-all approach to estate planning is ineffective. A knowledgeable attorney can tailor a plan to your specific needs: Young Families: The focus is often on nominating guardians and establishing trusts for minor children. Blended Families: Planning is critical to clearly define how assets are distributed between a current spouse and children from a previous relationship, preventing disputes. Business Owners: A plan must integrate business succession strategies to ensure the company you built can continue to thrive. Retirees: The focus may shift to asset preservation, legacy planning for grandchildren, charitable giving, and planning for long-term care. Your Legacy is a Choice—Make It a Deliberate One Estate planning is one of the most profound acts of love and responsibility you can undertake for your family. It replaces uncertainty with clarity, chaos with order, and court control with your control. It ensures that your life's work creates a lasting, positive legacy for the people you care about most. Don't leave your family’s future in Melbourne to chance. Take the First Step Today Creating a comprehensive estate plan is a straightforward process when guided by an experienced professional. If you are ready to secure your family’s future and build your legacy with intention, we invite you to take the next step. Book Your Consultation Today . Contact a knowledgeable Melbourne, Florida estate planning attorney at Sibley Law & Associates, PLLC to begin designing a plan that provides true peace of mind for you and your loved ones. This article is a service of Sibley Law & Associates , a Personal Family Lawyer® Firm . We don’t just draft documents; we ensure you make informed and empowered decisions about life and death, for yourself and the people you love. That's why we offer a Life & Legacy Planning Session™, during which you will get more financially organized than you’ve ever been before and make all the best choices for the people you love. You can begin by calling our office today to schedule a Life & Legacy Planning Session™. This material was created for educational and informational purposes only and is not intended as ERISA, tax, legal, or investment advice. If you are seeking legal advice specific to your needs, such advice services must be obtained on your own separate from this educational material.
June 4, 2025
Photo by Malone & Company Photography. "Tony Hsieh." May 24, 2010. www.flickr.com/photos/siliconprairienews/4636417133 Imagine this: you build an empire worth hundreds of millions, transform a city, and leave behind a legacy of innovation and generosity—only to have your loved ones spend years trapped in legal battles because your estate plan was missing, outdated, or misunderstood. This isn’t fiction. It’s the real story of Tony Hsieh, former CEO of Zappos, who died unexpectedly in 2020 at just 46. For years, it was believed he had no will. Then—nearly five years later—a mysterious document surfaced. And just like that, everything changed. But the damage was already done. A Legacy Lost in Limbo Tony Hsieh’s fortune, once valued at over $500 million, has been tied up in legal fees, creditor claims, and emotional turmoil for his family and business partners. The recently discovered will, dated 2015, was found not by a lawyer or family member, but in the possession of a man suffering from Alzheimer’s who had recently passed away himself. The will allegedly includes: A no-contest clause threatening to disinherit family members if they challenge it Confusing instructions Unknown executors, including someone close friends say they’ve never heard of Even if this document is deemed legally valid, it may raise more questions than answers. It also raises a critical truth: Without proper estate planning—no matter your age or net worth—your legacy can unravel fast. Why Traditional Estate Planning Falls Short At Sibley Law & Associates, we often see how traditional estate planning fails families. A will alone, even when properly signed and notarized, is not a plan. It's a document. And documents, especially if they're hidden, outdated, or incomplete, can create more conflict than clarity. Here’s what often goes wrong with traditional estate planning: The plan exists only in documents, not in conversations or relationships. The will is not stored securely or is forgotten altogether. There’s no clear guidance for what loved ones should do when the unthinkable happens. There’s no connection between the documents and a complete asset inventory. There’s no system in place to update the plan as life, relationships, and assets change. These gaps are what allow confusion and conflict to creep in—just like they did in Hsieh’s case. The Cost of an Incomplete Plan Tony Hsieh’s family has spent five years managing uncertainty, litigation, and pressure—all while grieving a tragic loss. His businesses, properties, and philanthropic intentions have been caught in limbo. What should have been a well-protected legacy has instead become a cautionary tale. Here at Sibley Law, we ask every client: If something happened to you tomorrow… would your loved ones know what to do? Would they know who to call? Would they be protected from unnecessary stress, court battles, or infighting? Why Life & Legacy Planning® Is Different We don’t believe in one-size-fits-all documents. We believe in relationships, updates, and real clarity . That’s what our Life & Legacy Planning® process is designed to provide. When you work with us, you’re not just getting a will or trust. You’re creating a living, evolving plan that includes: A complete inventory of your assets—so nothing gets lost or overlooked Instructions on where to find your plan and who to contact Ongoing updates to keep your plan aligned with your life Guidance for the people you’ve named—so they’re not left wondering what to do A relationship with your Personal Family Lawyer®—so your family has a trusted guide A chance to share not just your assets, but your values and stories with future generations This is how we keep families out of court and out of conflict—no matter what. Planning for Life. Building for Legacy. At Sibley Law, our mission is clear: to help Florida families create strong, legally sound plans that protect what matters most. We believe that legacy isn’t just about wealth. It’s about clarity, continuity, and care. Let Tony Hsieh’s story serve as a powerful reminder: It’s not enough to write a will. You need a plan. And your plan needs to be living, reviewed, and connected to the people you love. This article is a service of Sibley Law & Associates , a Personal Family Lawyer® Firm . We don’t just draft documents; we ensure you make informed and empowered decisions about life and death, for yourself and the people you love. That's why we offer a Life & Legacy Planning Session™, during which you will get more financially organized than you’ve ever been before and make all the best choices for the people you love. You can begin by calling our office today to schedule a Life & Legacy Planning Session™. This material was created for educational and informational purposes only and is not intended as ERISA, tax, legal, or investment advice. If you are seeking legal advice specific to your needs, such advice services must be obtained on your own separate from this educational material.
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